Friday, January 8, 2016

Again with the doctors



Greetings to Family and Friends!  We started off the New Year at Thom’s home for some great food and a fun time getting our family together.
At Thom's with Uncle Denny & Gina
Here in the Capitol City there’s a lot on the medical front so I’ll get to it. We had our consult with Dr. Mark Segal, the Oncologist at the Zangmeister Center.  Next week we follow up with his Nurse Practioner for “teaching”, but the bottom line is Johnny will be on four chemotherapy drugs: Avastin, Leucovorin, 5-Fluorouracil (5-FU) and Irinotecan.  The side effects go on and on like a bad horror movie.  His actual chemo will start the week of the 18th and will continue for three months.

The Former Boyfriend is transitioning to a ketogenic diet (here’s a link if you want to check it out http://www.charliefoundation.org/explore-ketogenic-diet/explore-1/introducing-the-diet)   fasting prior to chemotherapy, doing daily exercise and hyperbaric oxygen therapy dives.  Dom D’Agostino a cancer researcher has found that this combination decreases tumor cell viability and prolongs survival in metastatic cancer patients.  And as Scotty would say, “We’re givin’ ‘er all we got!”

Johnny has also done his hCG test.  We’ve sent it to the Navarro Medical Clinic and we’ll receive the results in a couple of weeks.

Today I had an appointment with Dr. Kanodia.  He’s pleased with my progress and I will follow up with him again in March.  So it’s good news that I have a little break from my doctor appointments.  It gives me more time to support Johnny during his treatment.  This cancer shit is a roller coaster and it will make you throw up again and again, both figuratively and literally.  It is not for the faint of heart.  If you’re going down this road you better have an awesome support system.  There are so many ups and downs and the downs really suck.  Thank you so much everyone for being a part of our lives and our journey.  We love you all.

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