One recurring side effect from the start of all this is
sleeplessness. When we hit the pillows we'll both drop right off. But
then somewhere in the middle of the night one or both of us will wake up
and have a hell of a time dozing back off. When we both sleep through
the night it's almost cause for celebration in the morning. Today we
were going to get up shortly before six. We had to be across town by
7:15 at the Zangmeister Center, where Jeannie's oncologist is based and
where all sorts of lovely chemotherapy drugs will be administered. Today
was a heart test, a meeting with a patient advocate and a thorough
explanation of the chemo drugs and their side effects. Lists that were
two pages long. Per drug. The nurse practitioner repeatedly counseled
that not all of these things happen. One of the ironies of all these
drugs is that up until now the strongest thing she's ever had to take
has been the occasional antibiotic.
Anyway we
naturally woke up around 3:30. When five o'clock rolled around and we
were still awake Jeannie said she was just going to get up in about 15
minutes and leash up the dogs. Tillie and Rose thought this was a
fabulous idea, since they weren't getting much sleep anyway thanks to
their damn humans. The stillness of the pre dawn dog walk is good for
clearing your head, since it's going to be re-cluttered by the onslaught
just ahead.
The chemo drugs that will be administered
have been around so long they're generics. Not a four dollar generic. No
these are thousand dollar a dose generics. But still less than I
expected. Insurance covers the lions share. Brian, the patient advocate,
is also the advocate for the Zangmeister Center's bottom line and
wanted to make sure we could cover our balance. By the same token he was
insistent that we never consider skipping any treatments or medications
because there's always money somewhere whether it's grants or
foundations or other charities or what have you. Ironically the most
expensive drug is given the day after each of the first four chemo
sessions, to boost her white blood cells, which have been kicked in the
butt by the chemo. This is a mere three thousand dollars per injection.
But the manufacturer will cover a big chunk of what insurance doesn't.
Or as I said they're making so damn much money off this one that they're
giving rebates. She's also been given some anti nausea drugs. There was
a lot of talk today about side effects including but not limited to
nausea. Jeannie was given some anti nausea drugs to have at the ready.
One has an interesting list of it's own side effects which includes, you
guessed it, nausea (nobody could make this up). It also has a number of
other helpful uses, including treatment of schizophrenia.
One
guaranteed side effect will be hair loss. Tomorrow afternoon Jeannie is
going wig shopping with a friend who will remain nameless here but who
got a head start on the cancer battles this spring. Like Jeannie she'd
led a very healthy lifestyle, eats no fast foods or processed foods.
Hell she's a vegetarian and they're two of the healthiest living people
you'd ever want to know.
Me, I want the drugs they
advertise on television, where you're laughing with your buddies at a
ball game watching Joe Theisman run to the mens room.
Good Luck tomorrow! Call us if you need anything.
ReplyDeleteE & J & C